Wednesday, November 18, 2009

The Calm Before The Storm

It seemed like I defeated it, I had won the battle and everything was going to be ok. But that's what it does..it leaves you alone to feel sure and confident it has passed but once you let go of your defenses, letting the guard down, inhaling deeply to feel the rush of success it comes back and grabs you harder, deeper, dragging you down further into the abyss. You are faced with the triggers of pain, turmoil and fear. Things you hoped that you had left behind, the things you wanted to keep in the past, things you thought wouldn't hurt you again but that is what happens before the storm...the calm fools you into thinking everything will be ok.

The last few months have been my calm...finally feeling alive, normal not suffocated by the fog, unable to feel anything but dullness and dread but to feel the sunlight, the warmth, to hear the laughter, to feel relief and even anger. But the feelings weren't tainted by the depression, they were real and they were mine again. But the storm has brewed and is trying to drag me under again. I don't want it to take over but I feel the darkness, the anger, pain and fears. I want to cry, explode and hide all at the same time. My triggers of the past has traumatized me far more than I realized. It's funny to be able to label my symptoms, to recognize what my problem however to fix it is another story.

A week and and half after my father died baby girl was scheduled to get her teeth fixed. She was born with little to no enamel on her baby teeth and even though she was breastfeed exclusively till her second birthday her teeth were decayed and she was unable to eat anything due to the sensitivity and pain. At 18 months we had taken her to a pediatric dentist who had ripped out her front four teeth without any anaesthetic. I was horrified to say the least as I sat in the back seat trying to comfort her as her gums bleed. I held back my tears, wiping her tears trying to comfort all awhile holding in my angry at the so called pediatric dentist. There was no way I was coming to get the rest of the work done. I guess I should have realized how shitty the place was the first time when they forced her down and clamped her mouth shut to get the x-rays. Even that day she was sacred to death calling for me wanting her "mamas", my breasts her comfort. But our crappy HMO only covered this dentist that was in another town from us. But we went to another pediatric dentist in town even if we had to pay on our own.

She needed to be put to sleep because she needed extensive work, she needed caps on all her molars and spacers on the top for when her permanent teeth came in. Just the anesthetic would start at $500 requiring the full deposit since it was actually Dr who cam to do that part. It took over two and half hours...but more than that I was in shock due to my father's death a week and half earlier.

Baby girl was in deep fear of anyone is scrubs and cried and held me tighter to her...the anesthesiologist came from behind and gave her a shot in her arm to make her fall asleep. She was out within min. and he carried her to the room. We waited feeling relieved that we didn't hear her screams this time. She laid in my arms as she woke still scared but little did we know this was only the beginning of the nightmare.

We went home and as she laid in my arms she fell asleep...half an hour later she jolted up crying, screaming, her eyes were open with a glazed look. Even though I held her she couldn't see me but kept on screaming and crying. She was still sleeping but awake...she was having night terrors. We tired to wake her, put cold water on her feet but she would keep screaming and crying and then suddenly stop. This went on every time she fell asleep. So she was unable to completely fall asleep. I looked online and found that after being put to sleep this happened to some other kids but there was not much on it. I told her dentist but they looked at me like I was crazy. Why is that every time you tell doctors about something that is happening they look at you as if your are lying.

She went through a week and half of this..we all had no sleep we were exhausted to say the least, I hadn't had much sleep since she was born because she slept with us and I had let her feed on demand. So sleep was a stranger to me but night time, sleep became a fear to me. What made the night terrors stop was her next visit to the dentist when they would put in her spacers. Naturally she was scared to death and cried as they sat her down, she didn't want to open her mouth, she started screaming and crying so the dentist needed four other assistant to hold her down so she could put the spacer in. I think the inability for baby girl to scream and express her fears when she was put to sleep made her have the night terrors but when she was able to fight, scream for her life she stopped having the night terrors. That night she finally fell asleep without waking up, we were finally able to sleep.

Since her visit to the dentist she had extreme fear of all doctors and anyone in scrubs. I guess it didn't help that she was with me in the hospital when my dad was in there. She has far too much exposure to the hospital and death at such a young age. She watched me trying to feed my dad, imitating me telling him to eat. She would repeat the same words, brushing away my tears looking up at me trying to comfort me. So her fear of anyone in scrubs was natural, but every visit to the doctors office was hell for me...she would start to shake, sweat and then cry. You could see the fear in her little face...I would start to sweat and feel nauseous. I hated going to the doctor..luckily she didn't required many trips to the doctors or dentist. We skipped the annual cleanings to the dentist and because I could not go in there with out sweating and feeling sick to my own stomach.

I noticed her gums would swell and bleed, the gums around her capped molars..it worried me cause I thought they were rotting inside and she would need to go to the dentist again. The hubby took her for a check up and they said it looked fine..she was scared but they went slowly, it had been over a year since the battle with the spacer and she came along with us on our dental appointments. I guess the fact she was able to express herself in words helped because slowly her fear was going away. But I didn't go with her, I couldn't so hubby would take her and I would take her to medical check ups.

We changed from HMO to PPO even though we had to pay an extra $100 every month because the HMO did not have our dentist. I had thought baby girl would need more work on her teeth from the swelling of her gums but the dentist didn't say anything nor did the hubby mention anything to the dentist. I guess I should have gone because he doesn't ask much. Her last visit to the dentist was very successful, they were able to clean her teeth with the polisher and even take x-rays. But her x-rays showed her permanent molars were coming up in angle against her baby molars. The dentist said she never saw anything like it. It also looked like she was missing a pair of molars but she had to come back when her regular dentist was there.

I guess I had really hoped she would not have anymore issues with her teeth even though I saw the swollen gums. Her next visit confirmed my fears and worst. Her jaw bones were not growing and were thin besides the permanent molars coming in crooked. The stranger part was she was having gum loss around the molars, something they had never seen in someone her age. So we were referred to the oral surgeon because even though they could extract her molars they wanted a biopsy of her gums to see what the problem was. Yes here was our storm, my fear came true but far more than I thought.

When you are told there is something wrong with your child you feel guilty. Even though you may have not had any control over it you feel like it is your fault. Even though she was born without any enamel on her teeth the dentist looked at me like it was my fault. Like I was giving her juice or candy every day without brushing. So every day I feel like I'm judged as a horrible parent because my child has metal caps in her mouth and missing teeth. They had told me that sometimes it just happens that the bay teeth does not form correctly but the permanent teeth would be fine. But now they were telling me her jaw one wasn't growing properly, that she was missing permanent teeth and worse yet she was having gums issues.

Shit I should have taken my pre-natal vitamins even though I felt sick from taking them, maybe that is why I had caused this on her. But my mom never took any and we had no issues with our teeth. So many different things have run through my head, I looked up any genetic disorders with teeth issues but found nothing. So even logically I know it isn't my fault I feel that I'm responsible.

The oral surgeon confirmed what I thought maybe the cause of Baby girls teeth problems, she was allergic to caps. That is why her gums and jaw bones were not growing in the areas of the capped molars. So the solution was to remove the caps/molars before they did anymore damage to her permanent teeth. She would need braces later but the main concern now was to get rid of the caps.

Yes that would mean no molars for her to chew with, it didn't make things easier that she already had her front top teeth pulled so she can't bit into anything nor chew hard, tough things. "I've never seen a toothless person starve", that is what the oral surgeon said when she asked how would she eat. It would be bothersome but she wasn't going to starve as he said. Her permanent molar was already coming in so hopefully all her teeth would come in sooner than later. Till then I will have to cut everything up for her.

I started this post because since her appointment with the oral surgeon I have felt the fear, anxiety and bad memories flood back. Even that day at the appointment I felt uneasy and nervous...I started sweating. I realize all the negativity and pain associated with her dental issues has been tied with my father's death. So I'm relieving the pain again...I feel the anxiety and fear. I'm scared even though it will be fine..I feel irritated and sad at the same time. So I had to write out my fears of what is going on in my mind. To make things worst for her this Friday was her class Thanksgiving party since this is the last week of school before break. Yes the budget cuts effected schools to close for a entire week for Thanksgiving instead of a few days. So besides getting her teeth removed she will miss her class party. I wanted to reschedule but I know it's better to get it over with then wait. So instead today we will make rainbow cupcakes for her class to share with tomorrow.


This is my storm, one that reaches deep within that grips my deepest fears and pain. One where I cannot control the pain of my child, where I'am left feeling helpless and useless. So I have been frozen in fear, in anguish unable to tell anyone of my fears. Trying to think positive, wishing the days would fly by and it would all be over and she was healing. That we were both healing and that the pain would scab over and the wound underneath would grow back stronger with the scar. I don't think the scar would ever fade but at least it would cover that hole. I want to move forward, I don't want to be frozen in fear, living in dread. I hope for the best and do not want the worst.